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Walgreens Cystic Fibrosis #CFChampions, #IC #ad

“This post was sponsored by Walgreens Cystic Fibrosis Services as part of an Influencer Activation for Influence Central. I received compensation as a thank you for my post.”

Today’s post is about Cystic Fibrosis and Navigating The Journey Together with Walgreens.

Being a caregiver of someone with Cystic Fibrosis, changed my entire life. Forever. I had recently married my husband who had custody of his three children from a previous marriage when things started getting serious. Right away I realized that something was wrong with Cindy but I thought it was allergy related. She kept a cold or what I thought was a cold. She would cough up mucus that was so thick she was constantly spitting it out. I called and scheduled her an appointment with an allergist in our area and that’s when our lives took a turn for the worst. After looking at her X-rays, he immediately called in other specialists. You can’t imagine the fear running through us, not knowing what was going on or what the problem was. It was after the consultation between themselves that we received the news. Cindy had Cystic Fibrosis. In the course of a couple of hours, we were briefed on CF and we were given every piece of information they had which basically told and showed us how important my role as a stay at home mom caregiver to a child with CF was was going to be.

The first thing that stuck in my mind was that Cindy was going to have to take her medication and was going to have to endure her therapy, religiously and without fail. There aren’t many children who are as adaptable as she was to this and it wasn’t an easy task on most days. She cried many times when I had to do her therapy because she was a child after all and she’d rather be outdoors playing with the other kids, but she was a real trooper. I cried along with the and I’d try my best to make it fun for her. She eventually came to realize as she got older, why we’d insist that she’d take her medicine and do her therapy. It was important for her to live. If Cindy had been given the diagnosis earlier, she probably would have accepted it better but as it was, she was about 7 when we heard the news.

The doctor predicted she’d no longer be with us by the time she reached a teenager but we prayed that he would wrong in his diagnosis. He was wrong. Cindy not only lived through all of her teen years, she married and had two beautiful children before God called his little angel home. This was because of the dedication of all of us. Her dad, her mom, her stepdad and myself. We knew the importance of medication adherence to live her life as long and as happy as was possible. Walgreens was there all the way for us with their Walgreens Cystic Fibrosis CF Champions program.

Walgreens Cystic Fibrosis #CFChampions, #IC #ad

Cystic Fibrosis affects 30,000 adults and children in the US which is a staggering amount to me. If it’s lifelong disease and it affects everything a person with CF does. There were so many times that Cindy couldn’t play because she was too sick, or there would be concern about cross contamination during flu season and other illness’s going around and it would break my heart to watch her watching the other kids play. Not only does CF affect the respiratory system, it affects the digestive system as well. Cindy had to take an enormous amount of pancreatic enzymes before meals and snacks because her pancreatic ducts were blocked. Overall, Cindy was a happy go lucky young lady, despite the hand, she was dealt. There were times however when she experienced high levels of depression and anxiety, which can greatly impact disease severity and outcomes, actively following medication regimens and understanding of CF.

Even though you might be going through the same thing we did, you are not alone. Walgreens CF Champions site is set up for individuals that are going through this journey with their loved ones.

Cystic Fibrosis Foundation. Patient registry annual data report 2013. https://www.cff.org/2013_CFF_Patient_Registry_Annual_Data_Report.pdf. Published October, 2013. Accessed November 3, 2015.
Wohletz MC. Cystic fibrosis: optimizing outcomes via team-based care. Pharmacy Practice News. www.pharmacypracticenews.com/SE2014. Published November 2014. Accessed October 23, 2015.

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19 Comments

  1. Anosa

    August 2, 2016 at 2:31 pm

    I can not even imagine what it must be like for those who live with CF or are caregivers to CF patients. Walgreens are doing an amazing thing with this campaign

  2. Bonnie g

    July 21, 2016 at 9:28 pm

    I am so glad that they have a website dedicated for those that are going through this. I am so sorry to hear about your loss.

  3. ricci

    July 21, 2016 at 2:37 pm

    CF is such a terrible disease. I am a respiratory therapist and work with CF patients all the time and I absolutely hate when something happens to them. I am so sorry for your loss.

  4. Annemarie LeBlanc

    July 21, 2016 at 11:49 am

    This is such an awesome campaign. Kudos to Walgreens for raising awareness and for reaching out to help more people suffering from cystic fibrosis! It will help make their lives a little better and a whole lot happier.

  5. Heather

    July 21, 2016 at 9:50 am

    Ah, I’m so sad she’s not with you today. You were an amazing step mom to her, identifying her problem and taking her to the doctor. I’m glad she was able to fight cystic fibrosis longer than predicted, but I’m sorry for your loss.

  6. Jeanine

    July 21, 2016 at 9:47 am

    I actually knew a girl in elementary school with CF. She has some major struggles and I’ve seen some of it. It’s really rough, and I’m so glad to see people talk about it! It’s something not a lot do!

  7. Rebecca Swenor

    July 21, 2016 at 5:26 am

    This sounds like a great site for those living and caring for those living with this disease Cystic fibrosis is indeed a very hard disease to live with. Cindy is a great example for those with this disease and it truly does help when you have a great support system. It is awesome what Walgreen’s has done for those with this disease. Thanks for sharing the Walgreen’s Cystic Fibrosis Champions web site.

  8. James

    July 21, 2016 at 12:53 am

    I am so very sorry for your loss. But what an amazing testimony that she lived to adulthood and had children.

  9. Amanda Tempel

    July 20, 2016 at 11:35 pm

    I truthfully, didn’t know anything about Cystic Fibrosis, and didn’t know so many people were affected! It’s amazing that Walgreen’s has a place for people to reach out.

  10. Jasmine Eclipse

    July 20, 2016 at 8:22 pm

    Hearing about companies that are doing good for their communities is just awesome. Thank you for sharing your story, this was so inspiring!

  11. Bella

    July 20, 2016 at 8:18 pm

    I love hearing that the companies that I love are giving back to the community in such great ways. I personally know a few people with CF so this really hits home.

  12. Liz Mays

    July 20, 2016 at 8:13 pm

    Gosh I didn’t realize CF affected so many people. Cindy sounded like an amazing person. Living with CF sounds like a daily struggle.

  13. lisa

    July 20, 2016 at 7:19 pm

    What an amazing story. I didn’t realize how many people are affected by CF but I’m glad Walgreens works to give back and help.

  14. Chrishelle Ebner

    July 20, 2016 at 3:03 pm

    I am so sorry for your family’s loss. It is good that through this tragedy you are choosing to help others with education to this disease. You are so brave, an inspiration.

  15. Pam

    July 20, 2016 at 1:23 pm

    My niece’s former boyfriend has CF. He’s in the hospital a lot. It’s great that Walgreens is supporting people on this difficult journey.

  16. Anita Fonte

    July 20, 2016 at 10:39 am

    I like companies that give back and Walgreens does it with it’s Cystic Fibrosis program. I have not heard about this illness before but now I am more aware.

  17. Mimi green

    July 20, 2016 at 10:31 am

    It takes a village. I’m so thankful she had a chance to experience life and motherhood.

    This was very educational for me. I’ve heard of CF it I didn’t know the details of how it changes a person and their family and friends.

  18. Alli

    July 20, 2016 at 7:48 am

    This is such a bittersweet post. I’m so glad that Cindy lived much longer than the doctors predicted and experienced marriage and motherhood. I have a friend with CF. She has lived much longer than they ever thought and is doing so much better thanks to prayer and the proper medication. I love that Walgreens is showing how much they care by setting up a site for people and their loved ones facing this horrible disease.

  19. Robin Masshole Mommy

    July 20, 2016 at 7:34 am

    I grew up with a friend who had CF. She passed a few years ago and I love that Walgreens is doing this. It’s a TOUGH disease.

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